| RisingAngel's profileCLOUD NYNE VIDEO DESIGNSBlogLists |  Tools  Help |
CLOUD NYNE VIDEO DESIGNSUnique keepsake videos from your photos. May 24 Cloud Nyne Revealed - on WEEBLY.COM!It is time.....
This blog has lasted two years and I have felt the need to 'upgrade' for awhile now. I want something with a better layout - simpler - classic looking.
So Cloud Nyne Design has moved! You can find the new site here: www.cloudnyne.weebly.com.
Add it to all of your bookmarks.....include it on your blog.....send any relevant information for CDH you can think of. I will add it.
It's been great having a blog here, but the time has come to move ahead. Weebly is great and I look forward to you visiting soon!
This blog will be dismantled shortly - thanks for following along so far! May 07 All Over The Map.....Lately I feel like all of my blog writing is "all over the map." I have taken The Perils and Humor of Motherhood off the table - it is now an actual book that my daughter can read when she is older. OK - it's the start of an encyclopedia type set....but she has it anyway. 370 pages of blog in 2 years. Dear Lord....it goes so fast, yet the final result was incredible. I have moved her blog to www.risingangel.wordpress.com - so hop on over and have a peek!
Cloud Nyne is evolving too. I have decided to move this blog elsewhere - somewhere.....more 'grown up.' I really want to continue with it, but I want it to be a serious look at how we can fight CDH. It was (and is) a great honor to know these families who have suffered such a loss - and I want to be there for them if I can. The videos created by Cloud Nyne have significant meaning to me as well as the families and the more CDH is known - the sooner we can find a way to make it......well.....to make certain that no baby and their family are touched by it again. The new blog will also include other families or anyone who wants a video done.
Since becoming part of the Parker Reese Foundation (I'm still a part of it, right Jes??
 ) I have wanted to categorize the Cloud Nyne Videos by name......family....SOMETHING...not just a list that you click on. We'll see how that goes. I also want to include updated links to various foundations/agencies/hospitals that deal with and support families of CDH. If you are one of them, please email me at rising_angel2k2002@yahoo.ca and let me know your link. I would appreciate it.Cloud Nyne's evolution (online) is not carved in stone as of yet - so if you have ideas, please feel free to comment on them! I am going to get to this transition as soon as my schedule allows, and I figure that should be by the end of June (ugh).
Once established in a new blogging home, it would be nice to have updates come in on how the families are doing, links to their pages (the more readers - the more awareness)....but I would need help with that. I know of some - but sadly, there are too many for me to read continually although I would like to.
I sometimes wonder if this blog has any meaning anyway - does anyone read it besides Jes, Lauren, Diane and Carole?? Then I got to thinking - it doesn't matter if no one ever stopped by here again as long as those women did. It's for them and their children that this online journey began, and the reason why it will continue.
I do hope you'll decide to join Cloud Nyne when it reaches its new home.......
March 31 A Giant Step....Posted for Carole....because her post says it all....
Commonwealth of Massachusetts Whereas Often a life-threatening birth defect, congenital diaphragmatic hernia is an opening in the diaphragm that allows the abdominal organs to push into the chest cavity, causing the limitation of lung growth; and Whereas According to Children's Hospital, a congenital diaphragmatic hernia occurs in every one in 2,500 births in the United States; and Whereas Proactive diagnosis and appropriate management of fetuses with congenital diaphragmatic hernia minimizes the incidence of emergency situations, dramatically improving survival rates; and Whereas Today provides the opportunity for families whose lives have been affected to celebrate life and to remember loved ones lost, to honor dedicated health professionals and to meet others and know they are not alone; and Whereas Through public awareness, the Commonwealth of Massachusetts seeks to minimize the devastating effects of congenital diaphragmatic hernia among all Massachusetts citizens, Now, Therefore, I, Deval L Patrick, Governor of the Commonwealth of Massachusetts, do hereby proclaim March 31, 2008, to be Congenital Diaphragmatic Hernia And urge all citizens of the Commonwealth to take cognizance of this event and participate fittingly in it's observance. Given at the Executive Chamber in Boston, this twenty-fifth day of March, in the year two thousand and eight, and of the Independence of the United States of America, the two hundred and thirty first. By His Excellency, William Franis Galvin God Save the Commonwealth of Massachusetts March 05 PARKER'S PEEPS - MARCH FOR BABIES!PARKER'S PEEPS ~ MARCH FOR BABIES
Jessica & Ashley The amazing couple from North Carolina are once again walking for the March of Dimes - March for Babies.
"Parker's Peeps" ~ the name of their team, was coordinated in honor of their daughter Parker Reese who passed away from Congenital Diaphragmatic Hernia. Jessica and Ashley are looking for team members to walk with them as well as donations to help support this incredible cause! They have a modest goal of $1500 - so please help them blow right past that and make an amazing contribution to the March of Dimes - March for Babies. Any donation will be gratefully accepted! You can reach their page for more information by clicking this link: http://www.marchforbabies.org/personal_page.asp?w=101000400&u=JessicaSingletary
MESSAGE FROM JESSICA ~ PARKER'S MOM Parker was born premature with a rare birth defect known as congenital diaphragmatic hernia on May 7, 2006 at 9:03 am. She fought a tough battle but passed away 20 hours later on May 8, 2006 at 5:00 am in her daddy's arms.
The mission of March of Dimes is to improve the health of babies by preventing birth defects, premature birth, and infant mortality.
Please visit my blog on Share Your Story So if you happen to live in the Lumberton area, sign up and join Parker's Peeps!
If you can't walk - you can donate!
Ashley & Jessica would love to have you join them!
We can ALL help save babies!
March 01 A Place in This World...."A Place in This World"
Cloud Nyne has created a very special video for a very special family. Jessica and Ashley are an amazing couple - and Cloud Nyne loves them dearly.
They lost their beautiful daughter Parker Reese to Congenital Diaphragmatic Hernia and naturally are missing her terribly.
Often, it is difficult for any of us to find "A Place in This World" and we hope that Jessica & Ashley find theirs. We have faith they will because the love they share is absolutely unstoppable. Please visit Parker's site at http://www.parkersingletary.com/, read her story, feel the amazing love and sign her guestbook. She is one little girl who will be eternally missed.
The player at the top of this window currently features Jessica & Ashley's video - "A Place in This World." Please allow time for the video to load - they are worth it!
|
|
||||||||
|
|
