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May 24 Cloud Nyne Revealed - on WEEBLY.COM!It is time.....
This blog has lasted two years and I have felt the need to 'upgrade' for awhile now. I want something with a better layout - simpler - classic looking.
So Cloud Nyne Design has moved! You can find the new site here: www.cloudnyne.weebly.com.
Add it to all of your bookmarks.....include it on your blog.....send any relevant information for CDH you can think of. I will add it.
It's been great having a blog here, but the time has come to move ahead. Weebly is great and I look forward to you visiting soon!
This blog will be dismantled shortly - thanks for following along so far! May 07 All Over The Map.....Lately I feel like all of my blog writing is "all over the map." I have taken The Perils and Humor of Motherhood off the table - it is now an actual book that my daughter can read when she is older. OK - it's the start of an encyclopedia type set....but she has it anyway. 370 pages of blog in 2 years. Dear Lord....it goes so fast, yet the final result was incredible. I have moved her blog to www.risingangel.wordpress.com - so hop on over and have a peek!
Cloud Nyne is evolving too. I have decided to move this blog elsewhere - somewhere.....more 'grown up.' I really want to continue with it, but I want it to be a serious look at how we can fight CDH. It was (and is) a great honor to know these families who have suffered such a loss - and I want to be there for them if I can. The videos created by Cloud Nyne have significant meaning to me as well as the families and the more CDH is known - the sooner we can find a way to make it......well.....to make certain that no baby and their family are touched by it again. The new blog will also include other families or anyone who wants a video done.
Since becoming part of the Parker Reese Foundation (I'm still a part of it, right Jes??
 ) I have wanted to categorize the Cloud Nyne Videos by name......family....SOMETHING...not just a list that you click on. We'll see how that goes. I also want to include updated links to various foundations/agencies/hospitals that deal with and support families of CDH. If you are one of them, please email me at rising_angel2k2002@yahoo.ca and let me know your link. I would appreciate it.Cloud Nyne's evolution (online) is not carved in stone as of yet - so if you have ideas, please feel free to comment on them! I am going to get to this transition as soon as my schedule allows, and I figure that should be by the end of June (ugh).
Once established in a new blogging home, it would be nice to have updates come in on how the families are doing, links to their pages (the more readers - the more awareness)....but I would need help with that. I know of some - but sadly, there are too many for me to read continually although I would like to.
I sometimes wonder if this blog has any meaning anyway - does anyone read it besides Jes, Lauren, Diane and Carole?? Then I got to thinking - it doesn't matter if no one ever stopped by here again as long as those women did. It's for them and their children that this online journey began, and the reason why it will continue.
I do hope you'll decide to join Cloud Nyne when it reaches its new home.......
March 31 A Giant Step....Posted for Carole....because her post says it all....
Commonwealth of Massachusetts Whereas Often a life-threatening birth defect, congenital diaphragmatic hernia is an opening in the diaphragm that allows the abdominal organs to push into the chest cavity, causing the limitation of lung growth; and Whereas According to Children's Hospital, a congenital diaphragmatic hernia occurs in every one in 2,500 births in the United States; and Whereas Proactive diagnosis and appropriate management of fetuses with congenital diaphragmatic hernia minimizes the incidence of emergency situations, dramatically improving survival rates; and Whereas Today provides the opportunity for families whose lives have been affected to celebrate life and to remember loved ones lost, to honor dedicated health professionals and to meet others and know they are not alone; and Whereas Through public awareness, the Commonwealth of Massachusetts seeks to minimize the devastating effects of congenital diaphragmatic hernia among all Massachusetts citizens, Now, Therefore, I, Deval L Patrick, Governor of the Commonwealth of Massachusetts, do hereby proclaim March 31, 2008, to be Congenital Diaphragmatic Hernia And urge all citizens of the Commonwealth to take cognizance of this event and participate fittingly in it's observance. Given at the Executive Chamber in Boston, this twenty-fifth day of March, in the year two thousand and eight, and of the Independence of the United States of America, the two hundred and thirty first. By His Excellency, William Franis Galvin God Save the Commonwealth of Massachusetts March 05 PARKER'S PEEPS - MARCH FOR BABIES!PARKER'S PEEPS ~ MARCH FOR BABIES
Jessica & Ashley The amazing couple from North Carolina are once again walking for the March of Dimes - March for Babies.
"Parker's Peeps" ~ the name of their team, was coordinated in honor of their daughter Parker Reese who passed away from Congenital Diaphragmatic Hernia. Jessica and Ashley are looking for team members to walk with them as well as donations to help support this incredible cause! They have a modest goal of $1500 - so please help them blow right past that and make an amazing contribution to the March of Dimes - March for Babies. Any donation will be gratefully accepted! You can reach their page for more information by clicking this link: http://www.marchforbabies.org/personal_page.asp?w=101000400&u=JessicaSingletary
MESSAGE FROM JESSICA ~ PARKER'S MOM Parker was born premature with a rare birth defect known as congenital diaphragmatic hernia on May 7, 2006 at 9:03 am. She fought a tough battle but passed away 20 hours later on May 8, 2006 at 5:00 am in her daddy's arms.
The mission of March of Dimes is to improve the health of babies by preventing birth defects, premature birth, and infant mortality.
Please visit my blog on Share Your Story So if you happen to live in the Lumberton area, sign up and join Parker's Peeps!
If you can't walk - you can donate!
Ashley & Jessica would love to have you join them!
We can ALL help save babies!
March 01 A Place in This World...."A Place in This World"
Cloud Nyne has created a very special video for a very special family. Jessica and Ashley are an amazing couple - and Cloud Nyne loves them dearly.
They lost their beautiful daughter Parker Reese to Congenital Diaphragmatic Hernia and naturally are missing her terribly.
Often, it is difficult for any of us to find "A Place in This World" and we hope that Jessica & Ashley find theirs. We have faith they will because the love they share is absolutely unstoppable. Please visit Parker's site at http://www.parkersingletary.com/, read her story, feel the amazing love and sign her guestbook. She is one little girl who will be eternally missed.
The player at the top of this window currently features Jessica & Ashley's video - "A Place in This World." Please allow time for the video to load - they are worth it! January 18 Diane & Tom Welcome Amanda Mae!
She is finally here!
Diane & Tom Vosse welcome adorable little Amanda Mae!
AMANDA MAE VOSSE Sunday, January 13, 2008 Congratulations to Diane, Tom & (big sister) Angel Dakota!! This little gal will never doubt how loved she is! Please be sure to check out Diane's blog at: http://dakotavosse5806.spaces.live.com January 13 The Smell of RainGrab a tissue - the following entry was posted by Jessica.
It is more than worth sharing. Thank you, Jes.
A cold March wind danced around the dead of night in Dallas as the doctor walked in to the small hospital room of Diana Blessing. She was still groggy from surgery.
Her husband, David, held her hand as they braced themselves for the latest news. That afternoon of At 12 inches long and weighing only one pound nine ounces, they already knew she was perilously premature.
Still, the doctor’s soft words dropped like bombs.
“I don’t think she’s going to make it,” he said, as kindly as he could.
“There’s only a 10-percent chance she will live through the night, and even then, if by some slim chance she does make it, her future could be a very cruel one”
Numb with disbelief, David and Diana listened as the doctor described the devastating problems Dana would likely face if she survived.
She would never walk, she would never talk, she would probably be blind, and she would certainly be prone to other catastrophic conditions from cerebral palsy to complete mental retardation, and on and on. “No! No!” was all Diana could say.
She and David, with their 5-year-old son Dustin, had long dreamed of the day they would have a daughter to become a family of four.
Now, within a matter of hours, that dream was slipping away
But as those first days passed, a new agony set in for David and Diana. Because Dana’s underdeveloped nervous system was essentially ‘raw’, the lightest kiss or caress only intensified her discomfort, so they couldn’t even cradle their tiny baby girl against their chests to offer the strength of their love.
All they could do, as Dana struggled alone beneath the ultraviolet light in the tangle of tubes and wires, was to pray that God would stay close to their precious little girl. There was never a moment when Dana suddenly grew stronger. But as the weeks went by, she did slowly gain an ounce of weight here and an ounce of strength there. At last, when Dana turned two months old, her parents were able to hold her in their arms for the very first time. And two months later, though doctors continued to gently but grimly warn that her chances of surviving, much less living any kind of normal life, w ere next to zero, Dana went home from the hospital, just as her mother had predicted. Five years later, when Dana was a petite but feisty young girl with glittering gray eyes and an unquenchable zest for life.
She showed no signs whatsoever of any mental or physical impairment. Simply, she was everything a little girl can be and more. But that happy ending is far from the end of her story.
One blistering afternoon in the summer of 1996 near her home in Irving, Texas As always, Dana was chattering nonstop with her mother and several other adults sitting nearby when she suddenly fell silent Hugging her arms across her chest, little Dana asked, “Do you smell that?”Smelling the air and detecting the approach of a thunderstorm, Diana replied, “Yes, it smells like rain.”Dana closed her eyes and again asked, “Do you smell that?” Once again, her mother replied, “Yes, I think we’re about to get wet. It smells like rain.” Still caught in the moment, Dana shook her head, patted her thin shoulders with her small hands and loudly announced, It smells like God when you lay your head on His chest.” Tears blurred Diana’s eyes as Dana happily hopped down to play with the other children.
Before the rains came, her daughter’s words confirmed what Diana and all the members of the extended Blessing family had known, at least in their hearts, all along.
During those long days and nights of her first two months of her life, when her nerves were too sensitive for them to touch her, God was holding Dana on His chest and it is His loving scent that she remembers so well. December 19 SPORT TURQUOISE - WIN A PRIZE!!
I am posting this for Jessica (Parker's Mommy).
What better way to inspire people to get involved and bring awareness than to offer gifts! I had posted a post similar to this one a few days ago but deleted it because I really wrote it on impulse and wanted to put some more thought into it. I think I have it just right now. Society has come to know the pink ribbon as Breast Cancer, red as Aids, yellow as Military and the puzzle is Autism so we need to do everything we can to add Turquoise to that list as Congenital Diaphragmatic Hernia Awareness. The more people made aware the better chance we have at beating this birth defect. I have emailed several companies requesting that they make the change on their websites of color definitions for the awareness ribbons and add us. Let’s all pray that it works out just as easily. So, here’s my proposal. I want each of you to submit a picture with you wearing turquoise or someone else wearing turquoise or just something turquoise. Nothing crude or rude please! There will be four (4) gifts given out to the winners. Most # of People in a Picture Wearing Turquoise - $75 MC gift card Most Creative - $50 Target gift card Sweetest Picture - $25 Wal-Mart gift card Cutest Picture - Gift Basket from Bath and Body Works
Get everyone you know involved! Let’s make this a huge success and help to bring awareness! Please submit your pictures to: Post Office Box 2199 Elizabethtown, NC 28337
The deadline for submitting will be January 31, 2008. It must be postmarked by this date or will not be eligible for consideration. If you have any questions please email at: November 26 Cloud Nyne's New Design!Cloud Nyne has a new design!
The photo section of the site has been removed. It is only because I have no real time to alter photographs - but I would love to if the request is made! The video section has now been divided into subsections: Newest Videos; Videos & Memorials. This will evolve as other video categories are added.
If you have had a video made by Cloud Nyne and would like to share it here - just let me know and I would be thrilled to add it!
With Christmas right around the corner (it's there - just peek - you'll see it!) - Cloud Nyne is revving up for another Christmas season of video keepsakes!
The past year has been incredible! Busy - but incredible! I have created numerous videos for many people right here in my community and the response has been terrific! On November 29th I will be heading to the local Christmas Show with a new AMAZING video display! I have been playing around with 3D and it has created some unbelievable effects! I will let you know how it goes!
As this site evolves, it will no longer focus ONLY on CDH baby and angel videos but all types of videos. CDH is still a very important topic to me and I will continue to post updated news if it comes my way - so if you have any CDH Baby or Angel info you would like to pass on - please let me know via email.
The CDH videos I have done have always been free for parents of Angels and babies. This will ALWAYS be free.
If you are the parent of a CDH baby or Angel and want a free video created for your little one please email me! Your video will be created and (with your permission) shared here. You will recieve a link to where your video is stored (private) online so you can view and download it to your own computer.
I can even ship you the DVD disk in the mail so you can view it on your TV if you do not know how to copy a DVD disk.
In lieu of payment for the CDH videos, I ask only that you make a donation (amount is your choice) to Toronto's Hospital for Sick Chldren. Avery is a beautiful Angel who passed away at SickKids after a 17 day battle with CDH (Congenital Diaphragmatic Hernia).
Cloud Nyne Design was established in her honor.
All donations are welcome!
To donate - please go here: https://www.sickkidsfoundation.com/donate/
For anyone else that would like a video created just for you and your family, the cost is $40 (copies are $5 each) and I can mail out the DVD disk in time for Christmas if orders are in soon!
SUBJECT LINE: CLOUD NYNE VIDEO
WHEN ORDERING A VIDEO
You will need 40-50 photos
*I can save photos from your blogs or get them via email.
You will need to choose a song
*I can help if you find this tough!
Any messages or titles you would like to include
(ie: Happy Birthday)
You will need a DVD player
*If you choose to receive the DVD disk or want to burn your own copy.
~Videos can be longer (2 songs and 80-100 photos). The cost will be double.
Copies are still only $5 each.
Videos can be created for:
Birthdays
Anniversaries
Wedding Photos
Children
New Baby
Retirement
Mother's Day
Father's Day
Family Christmas Video
Friendship Video
Memorials
ANY OCCASION YOU CAN THINK OF!
November 03 DIANE & TOM VOSSE ARE EXPECTING!The news is so exciting!
I'm sure I posted this back in May when Diane found out she was pregnant again, but here I go again!
Diane is currently at 28 weeks and 8 days and things are looking great so far! Tom and his beautiful wife, Diane lost their little girl Dakota Mae last year - and now they are thrilled to be adding to the family again!
Little Amanda (they aren't sure on the name yet but apparently Tom has been tossing ideas around!) should be arriving in a few months! We at Cloud Nyne Design can't wait! We have been following Diane's story for quite awhile now - she is a great friend!
So now...allow us to introduce you to...
Little Baby Girl!!
She's so CUTE ALREADY!! Diane is feeling excited and worried at the same time, so please be sure to keep them all in your thoughts as she goes through all of these emotions! Proud Mama at 6 months
Lookin' great, Mommy! So please head over to Diane's blog. you can read all about their beautiful first born, Dakota Mae and her story of CDH. She's a little Angel now - but is still going to be a wonderful big sister! You can reach her story here: http://dakotavosse5806.spaces.live.com/default.aspx Keep the faith, Diane! We're thinking of you guys! September 14 PARKER'S BLOOD DRIVE(POSTED FOR PARKER, ASHLEY & JESSICA)
Well, everything is official now! We are having the drive on Saturday, September 29th from 9:00 a.m to 1:30 p.m. and we are both so very excited! We are recruiting like crazy and hope that we have a huge turnout! It is an honor to share her story and by doing this drive we are saving hundreds of lives. You are truly giving the gift of life! For those of you reading who are close to home please call me and schedule an appointment to donate. All others please say a prayer that all goes smoothly! Take a look at the poster for the drive! Jessica
In case you are unsure of the information, here it is again: Parker Reese Singletary Memorial Blood Drive 9 am - 1:30 pm Bladenboro First Baptist Church (Bladenboro, North Carolina) To make an appointment call Jessica at: (910)-863-3913 or (910)-635-8858
As I was perusing Jessica & Ashley' blog - I also stumbled on this!!
Ashley and I have the wonderful honor of renovating a room and bathroom at the You KNOW that room will be gorgeous - so help out and send your donation today! August 25 A Very Special Angel Turns One Joseph MacGarvey Olson
Born August 25th, 2006
Eternally Missed
.....because sometimes words just aren't enough..... August 08 TEXAS CDH PICNIC!!TEXAS CDH PICNIC - MAKE A DONATION
Okay you can now make a donation for the Texas CDH Picnic if you'd like. Go to www.texascdhpicnic.com and click on the Make A Donation button. Any amount helps as we are paying for room rental, food/drink, decorations, entertainment and invitations.
We are hoping to find some local sponors to help with the cost of the event and have several event coordinators working on that right now. We are all very excited to be doing this event annually.
If you have any ideas, suggestions, comments or concerns please feel free to email me. And you don't have to be a CDH parent to volunteer. Any of you who are our friends have been affected too. We welcome all of you!
July 28 TEXAS CDH PICNIC Hey everyone!
News from Jessica Singletary about a Texas CDH picnic that will be coming up in January, 2008 down in Dallas, Texas!
You can head over to Jess's page and read all about it! there is even a form to fill out to request more information!
This will be an annual event, and they are currently seeking volunteers for all aspects of the picnic! So if you can help out, be sure to let Jessica know!
July 27 FACEBOOK - NEW SUPPORT GROUPSJust a quick update (yes it has been forever again!).
Facebook (www.facebook.com) has alot of great support groups for Pregnancy & Loss. These groups are created by everyday people - real people who have been through the loss. the groups are amazingly supportive and compassionate. If you are not a member of Facebook, it is free to join and easy to manage. It is also quite addictive!
If you need anymore information about how to find these groups once you join, feel free to leave a comment here. I would be happy to show you where they are.
June 27 AMAZING THINGS ARE HAPPENING....I realize it has been awhile since Cloud Nyne did any updates - and for that, I apologize. My goal here is to keep everyone informed of the happenings of our CDH families. Support, prayers and honoring these beautiful babies and Angels has become 'a strong purpose in life' for me. Unfortunately, I have been busy lately. I even reached the point where I thought to myself "Well, people BARELY comment here anyway - so what's the point?"
I know what the point is. Babies. This page will remain updated as long as I can muster it - for the moms, dads, babies, angels and for those who are forced to bear the suffering all of the above struggle with on a second by second basis. It's not about me.
It's about all of you. So I thank you for helping me keep my life in perspective, and for your friendships. And I thank you for allowing us to share your pain and honor your children.
I would love to update more frequently, but I am not in a position to aquire information on these wonderful families the way Lauren Z, Carole MacGarvey, Jessica Singletary, Jenn Miller or Diane Vosse are. So, I am pleading with anyone who knows a CDH family, or IS a CDH family - email me....tell me how you are....tell me what you need. The power of the internet is an amazing thing! If we work together, we can reach heights that have never been reached before.
There have been some WONDERFUL happenings!
Diane and Tom Vosse - mommy and daddy to Angel Dakota Mae - ARE PREGNANT!
Diane is suffering from a wicked case of the sickies, but all seems well. Please keep Diane in your prayers as this has been very hard on her. Please head over to her blog and let her know you're rootin' for her: http://spaces.msn.com/dakotavosse5806/
Down in Dallas, Texas - Little Miss Audrey is at it again! She is SUPER famous now - and has been put on a BILLBOARD! Dallas' Presbyterian Hospital's campaign is in full swing, and the Miller Family are quickly becoming a household name! Way to go, guys!
On Jenn Miller's blog: http://jennmillerblog.spaces.live.com/, Jenn had this to say about the big event:
Jason Hawkins called this morning when he saw it on his commute and then Jenny emailed and then Jen sent the picture above! It's SO cool, LOVE it! We would have loaded everyone up to go see it too but I have the nastiest sinus infection ever and feel as if my brain may explode any minute. Please call/email me though if you see it and tell me what you think--for those of you in Dallas, it's at Walnut Hill and 75 (east side, you see if you're going north), and at the southend of the Tollway just before you exit to 35. The print ad was in the Medical Directory of D magazine this month--a FULL page ad, it was pretty strange seeing us that big in a magazine, the paper was a quarter sheet in newsprint--full page, sharp quality is a whole other ballgame.
We'll be waiting for bus sightings as well as the "boulevard banners" soon! Audrey is so cute - it's unbelieveable!
This tidbit is a little late, but better late than never! Jana and Raymond LeWallen - Mommy and Daddy to the beautiful Angel Drew, welcomed Carson Grant Lewallen recently!
From Jana's blog: http://allaboutbabydrew.blogspot.com/2007_03_01_archive.html posted "Carson Grant Lewallen was born April 19th, 2007 at 16:17 hours, weighing in a 7 lbs 14 oz and just a hair below 20 inches." Congratulations to the entire LeWallen Family! Please keep all of the CDH families in your thoughts and prayers - today and always. June 08 JUNE BABIES AND ANGELSBirthday / Angel Days
These dates were provided by Diane Vosse - mommy to Dakota Mae Vosse (and she is expecting again!)
CONGRATS, DIANE, TOM & DAKOTA MAE VOSSE!!
17- Will Martin BD/AD
19- Taylor Hallenback BD
23- Ryan Mudderman BD
25- Ryan Mudderman AD
Please keep all of the CDH babies and Angels in your hearts, minds, thoughts and prayers. May 13 TO MOMMIES EVERYWHERE.....Today is a day to celebrate. Why you ask? Today is a day when the most important job in the world is recognized (we have our own DAY!). It's MOTHER'S DAY!
Unfortunately for some, it is also a day of great difficulty. Many moms out there have lost their precious babies.....not only to CDH. There are so many women who have to deal with what I see as something I could never do. I don't understand where they gather their strength from. They are heroic in my mind because they are living their lives where I believe I could only fall completely apart and never recover. I realize I can never truly imagine WHAT I would do....
As tough as it is, these women are still mommies. We are a united group and I hope that those that are missing their children are doing ok today. It can't be easy, but it will never change the fact that you are a mom to that special little one.
So Happy Mother's Day to all of you who have Angels out there! They may not be wrapped in your arms, but I know they will forever be tucked in your hearts.
I grabbed this beautiful poem from a comment 'Aimee' made on a blog I visit regularly. Thanks, Aimee....
I am a mother but you can not see your eyes are blind at what has happen to me. On the outside I look no different than you, on the inside I have scars if you only knew. I glance at your child from the corner of my eye smile remembering mine and start to cry. Holding yours gently placing them in a cart. I too hold mine still deep within in my heart. You take pictures of your child playing, my locket I grasp feeling the engraved saying. You straighten their hair from the wind blowing past, I saved a lock it's tightly pressed in glass. You fix the outfit you bought the other day, I packed most of my childs clothes away. Your child brings you a bouquet of flowers, at their grave I bring toys and sit there for hours. You plan a future for your child to grow, I have just memories that I'll never let go. I am a mother but you can not see - Tell me your sorry cause you can't understand me. May 08 REMEMBERING DAKOTA MAE VOSSEAnother little Angel in the CDH family who was born one year ago is the adorable
Little Miss Dakota Mae Vosse.
Her mommy and daddy, Diane and Tom call her their little tomboy Princess.
Dakota Mae became an Angel on May 8th, 2006 and has been so very missed. She was born on May 9th, 2006. Yes - I believe I have that right. You're smart - you can figure it out.
The world will never be the same without these beautiful children in it.
We're missing you today, Dakota.
Fly high, little tomboy Princess! You are special - you are loved - you are missed.
Happy Birthday Parker!!A special girl was born one year ago May 7!
Her name is Parker Reese Singletary, and she is a gorgeous little thing.
Parker became an Angel on May 8th, and the world misses her so much already.
Parker Reese have two of the greatest parents on Earth - Jessica and Ashley Singletary. They have endured so much and stayed so strong over the past year that it is impossible to imagine.
Please visit Jessica, Ashley and Parker at her web blog: http://www.parkersingletary.com/
You can also visit Jessica's blog (updated more frequently) at: http://jessicasingletary.spaces.live.com/ A memorial video was created for Parker and her family. To view it, please click here: http://video.google.ca/videoplay?docid=3827270226673432655&hl=en-CA HAPPY BIRTHDAY, PARKER! |
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