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8 mai Happy Birthday Parker!!A special girl was born one year ago May 7!
Her name is Parker Reese Singletary, and she is a gorgeous little thing.
Parker became an Angel on May 8th, and the world misses her so much already.
Parker Reese have two of the greatest parents on Earth - Jessica and Ashley Singletary. They have endured so much and stayed so strong over the past year that it is impossible to imagine.
Please visit Jessica, Ashley and Parker at her web blog: http://www.parkersingletary.com/
You can also visit Jessica's blog (updated more frequently) at: http://jessicasingletary.spaces.live.com/ A memorial video was created for Parker and her family. To view it, please click here: http://video.google.ca/videoplay?docid=3827270226673432655&hl=en-CA HAPPY BIRTHDAY, PARKER! 5 mai CDH - MAY BABIES & ANGELSI can't take credit for finding this information out. All the kudos go to Diane Vosse as it is her blog that I stole this from. Visit Diane here http://dakotavosse5806.spaces.live.com/ to read all about her beautiful Angel Dakota Mae! Dakota Mae would have celebrated her first birthday on May 8th.
May Birthdays & Angel Days
May 4- Audrey Miller BD
May 7- Parker Singletary BD
May 8- Dakota Vosse AD
Parker Singletary AD
May 9- Dakota Vosse BD
May 11- Sarah Howerton BD
May 15- Connor Mc Luckie BD
May 16- Connor Mc Luckie AD
May 21- Gregory Mueller BD
May 24- Madison Schultz BD/AD
May 26- Logan Myers BD/AD
May 28- Sean Feaster BD
CDH NEWS
(again....stolen from Diane)
Baby Nadya is here on May 1, 2007 at 7 lbs 4 oz and 21.5 inches long.
May 2, Nadya did wonderful through the night but around 5am her Sats dropped, they have her on Nitric Oxide now which is basically 1 step away from ECMO, they have the ECMO machine set up and ready to go.
May 1,2007 was a huge day for Ben! Dr. Kay's decided Bennett could come
off ECMO. He was taken off of the ECMO pump at 10:45am! He has been on ventilator support for almost six hours with no sign of any problems. They left the cannula's in his neck, in case he needs to be put back on ECMO. If he does well, they will take them out in the next few days. Noah was born May 1,2007 at 10:38 a.m., weighing 8 lb 5 oz and 19 inches long. He has a headful of black curly hair and looks like Amber's husband, Chris.
Sadly, Baby Noah has passed away. 4:51pm is the time precious Noah met our Lord in heaven.His little heart was just too tired to go on, and he needed to rest. My heart goes out to Amber and Her Family. 
Maddie is doing well. She still has the NG tube but is now
taking about half her bottle by mouth. She weighed 6 lb 8 oz on Friday (birth weight 4 lb 15 oz) Keep it up!!
Update on baby Seth. He was out of surgery. He had small & large intestines,
bowel and spleen in his chest cavity. He has a VERY small left lung but w/ that many organs in the chest that is to be expected. They were able to close his diaphragm w/ his own tissue so NO patch was used!! Seth is doing good the doctors are still pleased to see how he is doing after he had his surgery and he is on 30% of o2. Please keep all of the Babies and Angels in your prayers.
4 mai SHINING STAR II - HAPPY BIRTHDAY AUDREY!
This little gal was born one year ago. She was also born with CDH.
Her journey hasn't been easy, but little Audrey is at home with her family after a brave and often exhausting fight. Her parents know how lucky she is. One day she will too. She is celebrating her first birthday! So please be sure to head over to her Mommy Jennifer's blog and wish her a great day! http://jennmillerblog.spaces.live.com/ Audrey is also featured in a radio ad - I talk about it in my last entry, so check it out! Eat lots of cake, Audrey - and have a fabulous first birthday! 3 mai A SHINING STARREMEMBER THIS GEM??
The print ad features Jennifer Miller and her beautiful baby Audrey! The Presbyterian Hospital of Dallas campaign is on the move and so are these two superstars!! What's more - there is a fabulous new RADIO AD that features these two amazing gals! Now, you can have a listen for yourself! Thanks to the internet, email and two lovely thoughtful ladies - I have been emailed that very ad. Thanks so much to Marcelle for sending this to me!! Thanks to Jennifer herself who sent it too! I really appreciate it ladies! So copy the link below to hear it for yourself!! You don't want to miss this little button's giggle! http://www.twango.com/channel/RisingAngel.public?type=mostrecent&tab=channels 20 avril ONE SMALL STEP FOR LAUREN, ONE HUGE STEP FOR CDH!She has done it again!
Lauren Ziebart has made the front page of THE WINDSOR STAR newspaper!
FRONT PAGE, PEOPLE!
She has been interviewed about her precious daughter, Avery - and her crusade for the eradication of CDH. This girl is on fire!
Congratulations, Lauren on putting yourself out there for such a worthy cause - our children.
To check it out, head here:
Great job, Lauren - you should be so very proud! Avery is - and so are we!!
17 avril HEAVEN'S ANGELSMCKENNA LYNNE VAREN June 24th,2006-April 15th,2007
Once again, it breaks my heart to say that another beautiful child has been taken by CDH. McKenna Varen was born on June 24th, 2006 weighing 7 lbs, 1 oz and 20 inches long.
She was a fighter, and bravely battled through what most of us can never possibly imagine. Please head over to their site to leave your condolences.
Fly high, little McKenna.
Also being VERY missed...
RAYMOND DREW LEWALLEN
Drew was diagnosed at 18.5 weeks gestation with a congenital diaphragmatic hernia.
This adorable little boy was born March 8, 2006, weighing in at 7 lbs. 10 oz. and 22 inches long. He passed away on Easter Sunday, April 16, 2006.
You can click over to the page Drew's mommy Jana has set up here:
The world is missing these two amazing babies....but never as much as mommy and daddy miss them. 13 avril VOTE FOR CLOUD NINE DESIGN!!I can't say that I am surprised by the nomination....
I nominated this blog MYSELF! Haha.
The purpose of the nomination was to get the word out about the blog itself, so that we can get the word out about CDH and possibly expand the knowledge base of people regarding Congenital Diaphragmatic Hernia.
I sure hope it works!
If you like what you see....please vote! We are actually in three categories thanks to "Jamie Gillespie" - someone I don't actually know. They run the Blogger Awards (or help to, I'm unsure) and they added Cloud Nyne Design to all three categories!
And if you are new to this blog - have a peek around and see what we're all about! You won't be sorry! We're a friendly bunch!
Here are the categories....for *drumroll* CLOUD NYNE DESIGN!!
(O.K....hey - whatever!)
So there ya have it! Click the links above until your fingers bleed! Vote...PLEASE vote - and tell everyone you know to vote! The more we do - the more people will learn about CDH!! Who knows - I might even WIN! Thanks muchos lots!!
10 avril AUDREY & HER MOM ARE FAMOUS!Jenn Miller (and the whole Miller family) are becoming famous - FAST!
Little Audrey Miller was born with CDH almost a year ago now. She is a fighter, and has been at home for some time now. Jenn (mommy) is a trooper too...and now they are part of an ad campaign to bring CDH awareness to the forefront! It is all part of the Presbyterian Hospital of Dallas' High Risk Obstetrics and NICU campaign!
Congrats to them for putting themselves out there in hopes that CDH will one day be history!
Check out her blog at:
Here are Jenn and the adorable little Audrey in their new print ad!
Great job, Millers!!
They are just cute as a bug's ear! Keep up the great work! If you know of a family that is struggling with the loss of a child to CDH - or of a family that is making a difference for the cause - please let us know. We would like to feature them on this site....so that everyone can learn about how impossible this fight can seem at times. Thank you. 6 avril A DARLING GIRL REMEMBEREDI realize this posting is a couple of days late, but for those of you that frequent here - April 3rd will always be remembered as "Avery's Angel Day."
This sweet little button passed away after a brave battle with CDH that lasted 17 days.
Her mommy, Lauren obviously had a rough day, but as always handled it with tact, class and extreme courage. Lauren has an amazing family to suuport her through the rough days, and I hope we as her friends can help do the same.
Shine bright, little Avery - you are a star.
~Always remembered~Always missed~Always loved. 25 mars RILEY JANE PROCHASKA
March 29, 2006 to March 24, 2007 It is with an extremely heavy heart that I say that beautiful little Riley Jane Prochaska went to Heaven yesterday. Her family is obviously devastated and in need of your prayers, so please send them their way. Riley fought so hard and was 5 days away from her first birthday. Please head over to Riley's page and leave your condolences. http://www.caringbridge.org/cb/inputSiteName.do?method=search&siteName=rileyjaneprochaska She will be so missed. She will be eternally loved. 24 mars JESSICA'S GONNA WALK THE WALK!
PLEASE SUPPORT JESSICA'S WALK! Jessica Singletary is walking on May 12, 2007 for babies everywhere! Jessica and Ashley lost their beautiful daughter Parker Reese to CDH last year, and know every penny counts when you fight to find a cure.
So hop over to her WalkAmerica site and donate some pennies....LOTS of pennies! Every bit counts - so donate $5....$10....or more! If you know a baby - a child (and you ALL do) or are a parent yourself, then donate to support Jessica in honoring her little one. She is willing to walk the walk.....so help her out! GO! http://www.walkamerica.org/personal_page.asp?si=&w=760200 Go now - donate and feel GREAT! And yes.....I already did. :P 17 mars Happy Birthday Avery Mae!!
A HUGE GIANT HAPPY BIRTHDAY GOES TO
AVERY MAE
Although Avery is no longer here on Earth, she and her phenominal mommy, Lauren are literally changing the world. I GIVE MY MOMMY KISSES I give my mommy kisses when she’s sleeping in the night, when she’s driving in her car and when her face just isn’t bright. I know my mommy loves me, and wishes I were there where she could sit and hold me and tell me that she cares. I knew from very long ago she would give her life for me but I had many things to do so much she couldn’t see. I give my mommy kisses for every tear she cries. She doesn’t know why I am gone although I know she tries. I kneel when she is praying for answers as to why. I wave here from the Heavens when she looks up to the sky. I smile when she speaks my name and calls me ‘little one.’ I see the veil across her eyes blocking out the sun. If only I could tell her and let her feel my touch So I give my mommy kisses so her heart won’t hurt so much. ~Shawn C
Don't forget to check out "Avery's First Year" - the new video (above) for Lauren and Avery. It was sent to her via mail, and she has already seen it. I forgot to ask her if she was OK with me posting it....I hope she is! It is 10 minutes long....so sit back, and enjoy the beauty of this wonderful little girl!
14 mars PAYPAL DONATIONS NOW ACCEPTED!Hey everyone!
You can now make a donation to
AVERY'S ANGELS
through PAYPAL!
PAYPAL ID: angel_avery17@hotmail.com
If you have a paypal account, it is a quick and easy way to make a difference!
If you don't have a Paypal account, you can still donate through email money transfer or snail mail!
Check out the links through Cloud Nyne Design!
Avery was born March 17th, 2006.
She would have been one year old on Saturday.
Lauren has collected just over $800 to date - and will be donating it to a worthy cause in Avery's name.....let's get that total over $1000 by Saturday!
Donate - and feel great!
Thank you for your support! 20 février BABY DAVID NALEDAVID IS AN ANGEL NOWBABY DAVID WAS BORN AT 9:44 AM AND PASSED AROUND 3:30 PM FEBRUARY 19th, 2007.
PLEASE PRAY FOR HIS FAMILY.
CRYSTAL AND JUSTIN ARE HOLDING UP BEST THEY CAN UNDER
THE CIRCUMSTANCES.
4 février AVERY'S ANGELSLittle Miss Avery Mae Ziebart would be celebrating her 1st birthday March 17, 2007. She lived 17 amazing days - she was a fighter.
Her mother Lauren is now on a mission.
It is a mission that she and many other CDH moms have taken up.
The mission: to eradicate CDH through research and increased awareness.
You can help!
Lauren has big plans for Avery's 1st birthday - and you can join her in the fight!
 Please consider making a donation to Avery's Angels today.
Let's help find a cure together....so no mother has to deal with losing a child to CDH.
If WE don't.....who will? 28 août ABOUT CLOUD NYNE
This page has been established in a very unusual way. I am a new mother. My interest in babies, motherhood and the like carried over to the internet, where I discovered a blog about a baby named Avery Ziebart.
Avery's mom Lauren knew she would be born with CDH (Congenital Diaphragmatic Hernia) and that there was a chance she may not survive. I followed Lauren and Avery's story and sadly, Avery lived only 17 (remarkable) days. I had never heard of CDH, but my heart broke for Lauren, and I needed a way to show her that not everything and everyone in this world is horrible and uncaring.
I created a video for Lauren using her blog photos.
That one video has turned into MANY videos, photo art and collages for mommies of CDH babies. It also turned into a friendship with Lauren.
THE VIDEOS
The videos are created to a song of your choice. Photos can be obtained either from your blog or via email. I then create the video and send you the saveable link. You can add these videos and collages to your blog, message boards - or send them to people you know via a link in an email.
Favorite or famous quotes/poems can be added - as well as personalized text. I am also able to incorporate any pictures you may not have (ie: angels, butterflies, clouds).
I am not an expert, but I truly enjoy creating these videos and collages. The examples posted speak for themselves.
Videos are available for anyone interested. They can be created for any occasion - Birthday Messages, Reunion Videos, Anniversaries, Births, Memorials, Family Videos and so on.
PAY IT FORWARD
Many have asked what I expect in return.
I expect nothing - but hope and encourage a donation be made to Avery's fund. Lauren is raising money for CDH awareness and research, and I knew this would be a great way to help.
Lauren and all of the other CDH mommies are truly phenominal women. They have survived the unimaginable and support each other like no other group I have witnessed.
It is with great faith that I embark on this journey of creating lasting memories for everyone. 26 août THANK YOU'SShawn
Thank you so much for the video you made for us about Jacob. To have his memories displayed like this is a treasure we will have for a lifetime. You have done an amazing job on this for us and for that I cannot thank you enough.
Tania & Darryl Hi Shawn,
I would just like to Thank You from the bottom of my heart for the time and effort you poured into making my video so Special! It is without a doubt that you are a truly unique, gifted and kind hearted person. I love everything about my video and will cherish it for many years to come. Thank You again for all that you have done. Love Amanda, Chris, Kaylee, Alyssa and Liam Armstrong Dear Shawn,
Thank you from the bottom of my heart for the video that you created for Avery and I. Everything about it is perfect - the music is so appropriate, the timing of the pictures fading in and out, the added extras that you put in (I especially love the angel that kind of looks like she's whispering 'shh' in time with the symbols near the end,) and of course, my beautiful daughter. I also love the phrase that you personally made up at the end, 'holding you in my heart, until I can hold you again in my arms.'
Though I will never have Avery here with me on earth again, to have this video allows me to see her every day. Of course, I can't watch it without crying! Because you opened your heart to a stranger, I now have something so special. I know that you put every painstaking effort into it. You have truly given memories of Avery's entire lifetime, that will last my entire lifefime.
Thank You.
Love Lauren and Avery Ziebart
 Lauren
Avery's Mommy 3/17/06 - 4/3/06, LCDH, ACD
"An angel in the book of life, wrote down my baby's birth,
And whispered as she closed the book, 'too beautiful for earth.'"
Shawn, THANK YOU !!!!!!! So much for that video. You have done a Great Job!! Dakota would have loved it.You have just made my Day. I will never forget that you did this for me Thank You again!!!! Diane Vosse
Shawn,
Shawn,
Oh my goodness, Shawn!! That is amazing! I see her first Nemo in there. :) She's going to love it! I'm going to print it out and frame it for her and present it to her at her b-day party on Saturday. Your talent is a gift. It astounds me and never fails to touch my heart.I don't know how to thank you for all that you have done for my family. Jana |
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