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13 mai TO MOMMIES EVERYWHERE.....Today is a day to celebrate. Why you ask? Today is a day when the most important job in the world is recognized (we have our own DAY!). It's MOTHER'S DAY!
Unfortunately for some, it is also a day of great difficulty. Many moms out there have lost their precious babies.....not only to CDH. There are so many women who have to deal with what I see as something I could never do. I don't understand where they gather their strength from. They are heroic in my mind because they are living their lives where I believe I could only fall completely apart and never recover. I realize I can never truly imagine WHAT I would do....
As tough as it is, these women are still mommies. We are a united group and I hope that those that are missing their children are doing ok today. It can't be easy, but it will never change the fact that you are a mom to that special little one.
So Happy Mother's Day to all of you who have Angels out there! They may not be wrapped in your arms, but I know they will forever be tucked in your hearts.
I grabbed this beautiful poem from a comment 'Aimee' made on a blog I visit regularly. Thanks, Aimee....
I am a mother but you can not see your eyes are blind at what has happen to me. On the outside I look no different than you, on the inside I have scars if you only knew. I glance at your child from the corner of my eye smile remembering mine and start to cry. Holding yours gently placing them in a cart. I too hold mine still deep within in my heart. You take pictures of your child playing, my locket I grasp feeling the engraved saying. You straighten their hair from the wind blowing past, I saved a lock it's tightly pressed in glass. You fix the outfit you bought the other day, I packed most of my childs clothes away. Your child brings you a bouquet of flowers, at their grave I bring toys and sit there for hours. You plan a future for your child to grow, I have just memories that I'll never let go. I am a mother but you can not see - Tell me your sorry cause you can't understand me. 8 mai REMEMBERING DAKOTA MAE VOSSEAnother little Angel in the CDH family who was born one year ago is the adorable
Little Miss Dakota Mae Vosse.
Her mommy and daddy, Diane and Tom call her their little tomboy Princess.
Dakota Mae became an Angel on May 8th, 2006 and has been so very missed. She was born on May 9th, 2006. Yes - I believe I have that right. You're smart - you can figure it out.
The world will never be the same without these beautiful children in it.
We're missing you today, Dakota.
Fly high, little tomboy Princess! You are special - you are loved - you are missed.
Happy Birthday Parker!!A special girl was born one year ago May 7!
Her name is Parker Reese Singletary, and she is a gorgeous little thing.
Parker became an Angel on May 8th, and the world misses her so much already.
Parker Reese have two of the greatest parents on Earth - Jessica and Ashley Singletary. They have endured so much and stayed so strong over the past year that it is impossible to imagine.
Please visit Jessica, Ashley and Parker at her web blog: http://www.parkersingletary.com/
You can also visit Jessica's blog (updated more frequently) at: http://jessicasingletary.spaces.live.com/ A memorial video was created for Parker and her family. To view it, please click here: http://video.google.ca/videoplay?docid=3827270226673432655&hl=en-CA HAPPY BIRTHDAY, PARKER! 5 mai CDH - MAY BABIES & ANGELSI can't take credit for finding this information out. All the kudos go to Diane Vosse as it is her blog that I stole this from. Visit Diane here http://dakotavosse5806.spaces.live.com/ to read all about her beautiful Angel Dakota Mae! Dakota Mae would have celebrated her first birthday on May 8th.
May Birthdays & Angel Days
May 4- Audrey Miller BD
May 7- Parker Singletary BD
May 8- Dakota Vosse AD
Parker Singletary AD
May 9- Dakota Vosse BD
May 11- Sarah Howerton BD
May 15- Connor Mc Luckie BD
May 16- Connor Mc Luckie AD
May 21- Gregory Mueller BD
May 24- Madison Schultz BD/AD
May 26- Logan Myers BD/AD
May 28- Sean Feaster BD
CDH NEWS
(again....stolen from Diane)
Baby Nadya is here on May 1, 2007 at 7 lbs 4 oz and 21.5 inches long.
May 2, Nadya did wonderful through the night but around 5am her Sats dropped, they have her on Nitric Oxide now which is basically 1 step away from ECMO, they have the ECMO machine set up and ready to go.
May 1,2007 was a huge day for Ben! Dr. Kay's decided Bennett could come
off ECMO. He was taken off of the ECMO pump at 10:45am! He has been on ventilator support for almost six hours with no sign of any problems. They left the cannula's in his neck, in case he needs to be put back on ECMO. If he does well, they will take them out in the next few days. Noah was born May 1,2007 at 10:38 a.m., weighing 8 lb 5 oz and 19 inches long. He has a headful of black curly hair and looks like Amber's husband, Chris.
Sadly, Baby Noah has passed away. 4:51pm is the time precious Noah met our Lord in heaven.His little heart was just too tired to go on, and he needed to rest. My heart goes out to Amber and Her Family. 
Maddie is doing well. She still has the NG tube but is now
taking about half her bottle by mouth. She weighed 6 lb 8 oz on Friday (birth weight 4 lb 15 oz) Keep it up!!
Update on baby Seth. He was out of surgery. He had small & large intestines,
bowel and spleen in his chest cavity. He has a VERY small left lung but w/ that many organs in the chest that is to be expected. They were able to close his diaphragm w/ his own tissue so NO patch was used!! Seth is doing good the doctors are still pleased to see how he is doing after he had his surgery and he is on 30% of o2. Please keep all of the Babies and Angels in your prayers.
4 mai SHINING STAR II - HAPPY BIRTHDAY AUDREY!
This little gal was born one year ago. She was also born with CDH.
Her journey hasn't been easy, but little Audrey is at home with her family after a brave and often exhausting fight. Her parents know how lucky she is. One day she will too. She is celebrating her first birthday! So please be sure to head over to her Mommy Jennifer's blog and wish her a great day! http://jennmillerblog.spaces.live.com/ Audrey is also featured in a radio ad - I talk about it in my last entry, so check it out! Eat lots of cake, Audrey - and have a fabulous first birthday! 3 mai A SHINING STARREMEMBER THIS GEM??
The print ad features Jennifer Miller and her beautiful baby Audrey! The Presbyterian Hospital of Dallas campaign is on the move and so are these two superstars!! What's more - there is a fabulous new RADIO AD that features these two amazing gals! Now, you can have a listen for yourself! Thanks to the internet, email and two lovely thoughtful ladies - I have been emailed that very ad. Thanks so much to Marcelle for sending this to me!! Thanks to Jennifer herself who sent it too! I really appreciate it ladies! So copy the link below to hear it for yourself!! You don't want to miss this little button's giggle! http://www.twango.com/channel/RisingAngel.public?type=mostrecent&tab=channels |
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