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20 avril

ONE SMALL STEP FOR LAUREN, ONE HUGE STEP FOR CDH!

She has done it again!
Lauren Ziebart has made the front page of THE WINDSOR STAR newspaper!
 
FRONT PAGE, PEOPLE!
 
She has been interviewed about her precious daughter, Avery - and her crusade for the eradication of CDH. This girl is on fire!
 
Congratulations, Lauren on putting yourself out there for such a worthy cause - our children.
 
To check it out, head here:
 
 
Great job, Lauren - you should be so very proud! Avery is - and so are we!!
 

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17 avril

HEAVEN'S ANGELS

MCKENNA LYNNE VAREN

June 24th,2006-April 15th,2007

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Once again, it breaks my heart to say that another beautiful child has been taken by CDH. McKenna Varen was born on June 24th, 2006 weighing 7 lbs, 1 oz and 20 inches long.
 
She was a fighter, and bravely battled through what most of us can never possibly imagine. Please head over to their site to leave your condolences.
 
 
Fly high, little McKenna. 
 
Also being VERY missed...
 
RAYMOND DREW LEWALLEN

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Drew was diagnosed at 18.5 weeks gestation with a congenital diaphragmatic hernia.

This adorable little boy was born March 8, 2006, weighing in at 7 lbs. 10 oz. and 22 inches long.
He passed away on Easter Sunday, April 16, 2006.
 
You can click over to the page Drew's mommy Jana has set up here:
 
 
 

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The world is missing these two amazing babies....but never as much as mommy and daddy miss them.

13 avril

VOTE FOR CLOUD NINE DESIGN!!

I can't say that I am surprised by the nomination....
I nominated this blog MYSELF! Haha.
 
The purpose of the nomination was to get the word out about the blog itself, so that we can get the word out about CDH and possibly expand the knowledge base of people regarding Congenital Diaphragmatic Hernia.
 
I sure hope it works!
 
If you like what you see....please vote! We are actually in three categories thanks to "Jamie Gillespie" - someone I don't actually know. They run the Blogger Awards (or help to, I'm unsure) and they added Cloud Nyne Design to all three categories!
 
And if you are new to this blog - have a peek around and see what we're all about! You won't be sorry! We're a friendly bunch!
 
Here are the categories....for *drumroll* CLOUD NYNE DESIGN!! 

My site was nominated for Best Charity Blog!

My site was nominated for Best Parenting Blog! 

(O.K....hey - whatever!)

My site was nominated for Best Health Blog!

So there ya have it!

Click the links above until your fingers bleed!

Vote...PLEASE vote - and tell everyone you know to vote!

The more we do - the more people will learn about CDH!!

Who knows - I might even WIN!

Thanks muchos lots!!

 

 

10 avril

AUDREY & HER MOM ARE FAMOUS!

 
Jenn Miller (and the whole Miller family) are becoming famous - FAST!
 
Little Audrey Miller was born with CDH almost a year ago now. She is a fighter, and has been at home for some time now. Jenn (mommy) is a trooper too...and now they are part of an ad campaign to bring CDH awareness to the forefront! It is all part of the Presbyterian Hospital of Dallas' High Risk Obstetrics and NICU campaign!
 
Congrats to them for putting themselves out there in hopes that CDH will one day be history!
 
Check out her blog at:
 
Here are Jenn and the adorable little Audrey in their new print ad!
 
Great job, Millers!!
 
 

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They are just cute as a bug's ear!

Keep up the great work!

If you know of a family that is struggling with the loss of a child to CDH - or of a family that is making a difference for the cause - please let us know. We would like to feature them on this site....so that everyone can learn about how impossible this fight can seem at times.

Thank you.

6 avril

A DARLING GIRL REMEMBERED

I realize this posting is a couple of days late, but for those of you that frequent here - April 3rd will always be remembered as "Avery's Angel Day."
 
This sweet little button passed away after a brave battle with CDH that lasted 17 days.

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Her mommy, Lauren obviously had a rough day, but as always handled it with tact, class and extreme courage. Lauren has an amazing family to suuport her through the rough days, and I hope we as her friends can help do the same.
 
Shine bright, little Avery - you are a star.

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~Always remembered~Always missed~Always loved.